An annual event supporting research and the fight against a disorder that affects 50,000 people is coming back to our area.
The 7th Annual Race for Matt & Grace will be held Saturday Sept. 24 at RIC. The 5K run and 2.5k walk raises money for Friedreich’s Ataxia, or FA.
In the above video, race organizer Mike Crawley and FA patient Matt Dilorio tell us more about the upcoming event.
FA is a debilitating, life-shortening degenerative disease.
Many individuals develop the onset of symptoms between the ages of 5 and 18 years. Adult or late onset FA is less common, affecting 25% of diagnosed individuals, and can occur anytime during adulthood.
Friedreich’s Ataxia Research Alliance, or FARA, is supporting research that will improve the quality and length of life for those diagnosed with the disease and will lead to treatments that eliminate its symptoms.
Here are some of the other segments featured on The Rhode Show on Sept. 13, 2016: